Update on Kate

First of all, you have no idea how your comments on my last post helped me. Not just because they gave me good direction and thoughtful suggestions, but also because it’s such a blessing to have women who might not agree on everything come together to try and help. I really don’t think I can express what it meant to me, so thank you for the respectful, kind ways in which you offered your experiences and ideas.

At Kate’s appointment, her pediatrician went over several questions with me and it seemed based on that, there is a good chance she will be diagnosed with ADD/ADHD. It was a really basic questionnaire and she suggested that we take her in for some more testing to get a better idea of what’s going on. While I do think there is some ADD stuff, I also think there may be some sensory/emotional issues that come into play and before we even consider treatment (whatever that would be), we need to know exactly what we’re dealing with. The cool thing about Kate’s pediatrician is that she lives two doors down from us and is a strong Believer. Kate plays with her friends in their backyard almost everyday, so she gets to see her in action quite a bit :)

There are two local places that were recommended to us-one is called the learning lab I think and the other is Currey-Ingram (sp?) here in town. I know the latter is super expensive but seems really extensive. Has anyone around Nashville had experiences with either of these or any others? Would love to hear your thoughts if you have.

So, we are prayerful about getting her in somewhere to be further evaluated and then will seek the Lord’s guidance as we decide the best course of action for her. I have already made several of the changes that were mentioned in your comments, and would welcome any additional thoughts along these lines. I’ve ordered a book on food choices for ADD kids and look forward to reading that. We did modify her diet drastically awhile ago but really didn’t see any consistent change in behavior. I’ve added Omega 3 vitamins too, since many of you mentioned them.

Ok, I’m going to hit the sack but I just wanted to check in and say thank you! I’ll keep you all posted as we go!

Love,

Ang


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  • kim!

    Hey Angie, my oldest one just started the Learning RX about 5 weeks ago – I’m thinking that is what you are talking about when you said the Learning lab {I also live in Murfreesboro.} So far, the program has been fantastic and I would recommend it!!! It was a little expensive, but we are on a 16 week program. I say go in for the consult. Google search and get the coupon off line for $50 bucks off because the evaluation is $200 without. They are suppose to be great with kids on the spectrum – which is our issue, ADD and ADHD. The overall cost was a definite budget buster for us, so let me know if you want more info about the program and I’ll send it to you. {I still owe you some paintings.}

    • Kristin Colquitt

      I agree, Kim! I was the Director of Trainers for the LearningRx in Kennesaw, GA before having my daughter. It is an excellent cognitive training program that is especially helpful in children with ADD/ADHD. Angie, I would be happy to answer any questions you may have about the program. Praying for sweet Kate!

  • fern katz

    Congratulations for doing so much research.  I have a couple of other comments that could have been added to my comment on the other post.  First, remember that if you begin medication-you do not have to continue it if it does not work.  The sensory and emotional issues might be at play–there is a lot of research on sensory right now and I am a big believer it plays hugely into emotions and learning.  But, if ADD is truly a part of it-medication may help you and Kate deal with the sensory and emotional issues much better.  All of the issues are so intertwined.  I wish we knew more about sensory issues when my son was little, but at that time no one really knew much about it.  Good luck!

  • http://www.scrappykitkat.blogspot.com Kathy

    I would be interested in that book you mentioned for my daughter … can you tell me the name of it?? Thanks!

  • http://www.theparsonagefamily.com/ Jessica Miller Kelley

    My in-laws went to Currey-Ingram’s graduation the other night (for an “adopted granddaughter” from their church), and from their description of the ceremony, it’s a school that gives a lot of personal attention and empowerment of the students’ abilities. Each student gave a short speech, the director spoke about each of them, etc. 

  • Talley

    I highly recommend Dr. Beurneui in Hendersinville. I think the website is restore you.net good luck.

  • Kerry @ Made For Real

    Any answers are such a welcomed relief sometimes. So glad you are getting some!

    ~ Kerry @ Made For Real

  • Bainielee

    I missed your last post but would like to comment here.  For years, my son has been diagnosed by several of his teachers as ADD.  I don’t believe too much in ADD except in severe mentally challenged cases.  Therefore, I didn’t buy into it.  I truly believe that it is so strong these days due to television, gaming systems and preservatives and poisons in our foods.  However, there are also other medical reasons for these types of behavior.  Not all are ADD.  We took our son in to have his eyes checked and they found a very common issue that is not often detected.  Not all eye doctors know how to find this problem.  I don’t recall the name of it but it mainly deals with the peripheral vision.  It makes focus mentally and visionally extremely difficult.  It is expensive to treat but so well worth it.  We saw a change in our son after a few weeks of the classes.  It was supposed to go for 18 months but our eye doctor ended up moving out of state and we had to stop treatments.  Thankfully, with the tools we had learned up to that point and some maturing on his part, there has been a definite change.  If you want any further information I would be more than happy to chat with you at bainielee@gmail.com.  Until then, my prayers are with you as you search and lean on God for answers.

    • Sara W

      Sounds similar to what I was describing for my daughter. She has Convergence Insufficiency. They wanted to put her through extensive/expensive treatment (that was more than an hour from home and only during school hours). We found another optometrist that was able to treat her and gave us a “bag of tricks” to do at home. It helped immensely. 

  • stephaniem

    Thank you so much for the update! I have been checking back here on a regular basis in anticipation of hearing something. You and your Kate have been on my heart and mind and in my prayers. I hope and pray wise, caring people continue to fall into your path where this circumstance is involved. May peace follow you and consume you. 

  • Coby

    I’m so glad you have some direction and a starting point!  That alone can be a big relief!  Continuing to pray for you and for the Lord’s direction in this area!

  • Aunt Mel

    The book “The Out of Sync Child” by Carol Stock Kranowitz is a great resource about sensory issues.  She also has another book titled “The Out of Sync Child Has Fun.”

  • Shayne Welch

    Praying for you and your sweet family.

  • Melissa

    Some missionary friends of ours in Japan, recently went through a similar situation.  They were told their 4 year old had Austim.  They returned to the states for further testing and what they thought would be learning how to treat.  They went through several tests at Vanderbilt and come to find out their daughter did not have Autism, but was allergic to Gluten which causes all kinds of sensory difficulties, they also found out that she was lactose intolerant.  So changing to a Gluten and Lactose Free lifestyle, they have seen an 180 degree shift in their daughters behavior.  May not be the same case for your family, but I know it has caused my husband and I to really start looking differently at what foods we consume as a family.

  • Melissa Irwin

    I have a friend whose son goes to Currey-Ingram.  My friend is an educator herself, with a Masters Degree and specializes in educating children with special needs (although she doesn’t teach at C-I).  She LOVES the school and only has wonderful things to say.  I would be happy to put you in touch with her if you’d like.  

  • mvaesa

    I pray you will find the answers you’re seeking for your sweet Kate and peace about what direction the Lord would have you go.   You may have already tried some of these food restrictions, specifically food dye restrictions, but that made a huge impact in my son’s ADD/ADHD behavior.  He’s a different child, not without normal strong-willed 3 year old child discipline issues, but much improved. : )You’ll have to test each color to see which affects her the most, if any, but this has been life changing for our family.   

  • MomsMustardSeeds

    I pray God directs your path for your sweet one.

  • Kathy Olson

    I don’t live in your area, but I’ve been directed to http://www.littlegiantsteps.com. We are trying this approach. I’m just starting with my son and so don’t know much about it yet, but thought it may interest you. Blessings!

  • Lisabalesmiller

    My son went through testing at The Learning Lab in Brentwood this past February. They are wonderful and helpful. I have even called to ask questions regarding school as recently as May and they took the time to call me and go over my options.

  • Connie L Amato-Mahle

    Angie,

    Thank you for the newest post on Kate.  It sounds like Someone upstairs is looking out for you during this trial (having your ped. just doors away).  ; )  ; )

    Prayers for dear Kate as well as for you and Todd.

    Hang in there, friend!

  • Dianne Stone

    Hey there. Sooo glad to hear that you are getting good counsel and the Lord is guiding you so sweetly. I wanted to mention to you along the lines of food choices: I’m convinced that there is no single cure-all for each and every child with regard to diet and its impact. As you may too, I have friends and family who have eliminated sugar, preservatives and dyes from their children’s diet and have seen good results with ADD and ADHD. Others haven’t. 

    That said, from own personal experience, gluten may be worth researching. In January of 2011, the Lord graciously showed me that I had a gluten intolerance. After suffering for years with ups and downs of depression, difficulty concentrating/focus, digestive issues and some other fun stuff that I won’t bore you with, once I cut off gluten, it was as if I’d started taking the best anti-depressant/focus pill out there. For me, it was as if the Lord had breathed life into me. Now, what does that mean for you. Again, the impact of gluten on different people is different. From everything I’ve read, rarely do two people have ALL the same symptoms. Because it’s kind of the ‘new kid on the block’ with regard to being in the media of late, it can be overwhelming, so I’d recommend taking it slow … That said, I’ve got some great resources, including cookbooks, etc if you want to give it a shot.  Praying, Dianne 

    • Erika

      The MAIN reason for gluten  problems is because we are eating GMO foods. Our foods are no longer the food God intended us to eat. 
       http://nogreaterjoy.org/articles/science-fiction-horror-story/

      At anytime anyone of us can become intolerant to gluten when our bodies have had enough.  We need to eat NON-GMO foods.
      Also,

      God bless you in your search for TRUTH, Erika

  • Erika

    Hi Angie!    Here are three links that I have found helpful.  I know you’re not talking about autism but it also addresses ADHD
    http://nogreaterjoy.org/articles/autism-answered/

     

    http://nogreaterjoy.org/answers/my-child-has-adhd-attention-deficit-hyperactivity-disorder-where-can-i-learn-more-about-this-disorder/

    Angie, I believe that you will find some answers here, as I have been richly blessed.

    http://www.youtube.com/watch?v=9WoMps4Pmpo   Dr. Rebecca Carley is HONEST.  This is an hour you will NOT waste.  Can’t over emphasize the urgent need to watch this.  Dr. Carley was an emergency surgeon that started questioning the not so good practices of her field. She tells her story here.  She talks about the “Creator” and she feels that’s how she came up with this info.  And then goes on to thank God for the Truth that he gave her because she put her life in service to Him, and she takes no credit for the information she shares.  Angie, this is very important to watch…

    One believer to another, Erika

  • Laura

    Another option might be the college psych program. I know hear in Orlando, the program at UCF is quite good, and very affordable. My girlfriend did it for her son, diagnosed with ADD, and she is the one who recommended it to me when I needed something budget-conscience. Just another avenue…I know there are some great schools near you. Our program has grad students run the tests supervised by their facilitator/professor.
    Good Luck. I know it can be stressful trying to come up with the right solutions for our kids! Praying for you! :)
    Blessings,
    Laura from FL

  • http://www.differentparent.com/ Wick Anderson

    Praying with you.  Parenting continues to be an adventure in releasing what we hold to be held by God.  I know you have hundreds of women already giving you advice, but I’ll add our doctor did mention a gluten-intolerance as sometimes being the source of ADD-like symptoms.  We have friends who began to remove gluten from their daughters’ diet, and it showed a noticeable difference.  God bless you and yours this week!!!

  • Salleboeuf

    Definitely go to a specialist now that your primary care physician has confirmed that the diagnosis is likely ADHD.  Visit http://www.chadd.org for additional information about ADHD.

  • Maurinorebecca

    Angie,
    a great  friend of mine has ADD and is  living fine with it… praying for you…

  • http://www.darkchocolateisbest.blogspot.com Scubagirl

    Angie, last year I went through extensive training on sensory processing disorders, and one of the things the “experts” said that stuck in my mind is that every child with ADD or ADHD has some sort of a sensory processing problem.  Which makes sense to me – I see lots of kids in the schools with attention problems, and there’s almost always some sort of sensory issue going on as well.  It’s become so prevalent, that it’s predicted that Sensory Processing Disorder will be added to the next DSM update.  I’ve got a book with lots of resources, ideas, suggestions, and accommodations that I’d be happy to share with you.  Email me at swimming1(at)bellsouth(dot)net, and we can “chat.”

  • Sonja T.

    Angie – I have a 15 year old boy with ADD, diagnosed about 6-7 years ago.  It has been a tough road, but he has many gifts and its been my job to share that with those in his life.  The best investment (time and $) as a mom looking back, would be taking him to some cognative training.  I don’t know if what you’re looking at is in that realm – but that was the thing that has helped the most.  It gave him confidence to move forward and tools in his toolbox to work with his brain or train it to work better/different/more effictively where it was not.   Behavioral training may be another good route…it’s a learning journey, soak up all you can, no one travels the exact same way.

  • http://www.ordinaryinspirations.blogspot.com/ Traci Michele

    continuing to pray for you and Todd… I know you’ll make the right decision for your sweet Kate.  God is with you, and has gone before you… He is preparing the way.  Let the Holy Spirit guide you … may He give you peace with your decisions and you lean upon Him.  Love, Traci Michele @ Ordinary Inspirations  http://www.ordinaryinspirations.blogspot.com

  • Lee R

    Praying for wisdom and guidance for you, Todd, and the doctors, tutors, and other professionals that may guide you through this experience. I had several teachers recommend that I be tested as a child but my parents thought ADD was ‘not real’ and that they would discipline it out of me. I would test off the charts in standardized testing, but just couldn’t stay on track in regular classes. Finally as an adult, and post-college, I decided to go talk to a doctor and it has changed my life. It is still a day to day struggle and I try not to think about what could’ve been different had I gotten help as a kid. I’m so happy you are being proactive. You are a wonderful mom and an inspiration.

  • http://profile.yahoo.com/X6LKOOTTRFL34J4EAW3SACG3GU Janet Boyden

    I am still praying for Y’all! Janet

  • Amy Longstreth

    Angie,

    My name is Amy, and I live in the Nashville area. A friend of mine has been following your blog and asked me to let you know what has worked for us with my son who is now 10. He was diagnosed with ADHD and a learning disability in reading two years ago by the Learning Lab. We have used Learning Lab for tutoring help in reading but we have used a Learning Therapist with the National Institute for Learning Development (NILD) in Murfreesboro as well. The easiest way to explain why we used both is this: A tutor finds your strengths in the way you learn and teaches you accordingly, and a learning therapist finds the weaknesses in the way you learn and works to strenghten those. We felt that both parts were necessary to give our son the help he needed. They have both been invaluable in different ways. I can’t even begin to tell you in this brief comment all that God has done. He is SO amazing! I give Him all the glory for the paths that He has opened up on this journey. I would be happy to share more if you are interested, but don’t want to take up your time if you are not. :) Feel free to email me.

    Sincerely,
    Amy

  • Dea Shatterly

    My name is Dea, and I grew up with Kelly Stamps.  My son has ADHD and autism so we’re very aware of what you are going through.  It isn’t easy with all the information out there to know what resource to use.  Some parents advocate a gluten-free, casein-free diet.  We tried it and saw no improvement so we don’t use it.  What has really worked the best for us is to limit the amount of sugar, caffeine and “screen time” our son gets.  By screen time, I mean TV, computer, video games, etc.  It isn’t an easy road to hoe by any means, but once you get the final answer as to what’s going on, you’ll be able to do more.  That being said, here’s what else has worked for us.  No clothing with tags…they’re a lot easier to find now than when he was first diagnosed and you can google it to help.  Also, we put Matthew in as many social activities as we can to increase his tolerance to noise/lights, etc.  This February, we got Matthew a service dog to help with the sensory issues, meltdowns, etc. that seem to go hand in hand with his issues.
    Let me know if I can help in any way.  My blog is http://www.shatterlyantics.blogspot.com

  • Doctor Dani

    Dear Angie,

    My name is Danielle and I’m a doctoral level educational psychologist from NYC. I’ve read a lot of the research on ADHD and attended several conferences on the topic. I have so much advice to give, from both a psychological and faith-based perspective. I also have a ton of resources that I can send you that I’ve accumulated for the parents of the children that I work with every day. It would take me forever to post in the comments. Please feel free to e-mail me with any questions you have.

    Danielle

  • http://www.whenlifegivesyoulemons2.blogspot.com/ Krista

    I’ve followed your blog for a few months now, but I’ll have to say I’ve never commented until now.  This though is something very near to my heart.  My son was diagnosed with ADHD when he was 7 years old.  He is now 20.  At that time the doctor prescribed Ritalin and after looking up all the side effects, and of course much prayer, I chose not to put him on the prescription.  Instead we started a holistic regimen.  Every morning he started his day with a spoonful of flax oil, a Pedi-Active ADD supplement, and Omega 3 vitamins.  The supplements increased his ability to focus.  Being a very hyper person myself, I learned to channel his energy into productive things.  He was prone to anger therefore we removed all fighting games and never let him watch cartoons or movies with fighting.  He thrived on structure therefore our lives revolved around a calendar that was basically for him but helped us all.  He is not my only child so to make sure that no one felt mistreated the daily schedule was for us all.  We ate our meals at a certain time everyday.  If we deviated from this then it was a pre-planned event.  Yes, there were times that emergencies came up as my husband is a youth pastor and we had to change our schedule at the last minute however we tried to keep everything as structured as possible.  He played baseball until he was in high school because it is a very structured sport.  It not only taught him good sportsmanship but it also taught him structure.  My son is now a junior in college.  He still has to live by a schedule and works with a planner everyday.  When his schedule gets too chaotic then I see him start struggling with everything.   This is when Mom steps in and helps him set priorities and get things back on schedule.  If he goes without eating then he also starts struggling.   Above it all I have to tell you that this Mom prayed, and prayed very hard.  I remember the day my son was diagnosed.  I called my Mother crying like never before.  I’ll never forget what my Mom said to me that day.  1st she said you are very hyper too so what’s the big deal.  2nd she said Nothing is bigger than our God.  God made him and he can heal him!  

  • https://aftermath1014.wordpress.com/ Andrea

    So happy you all are in good hands and you remain in my prayers!  I forgot to mention in the last post to be sure to check out Kate’s sleep quality.  Likely someone else has mentioned it but I didn’t have time to read through all the comments to see so I’ll just throw it out there in case because sleep problems cause many of the same symptoms as ADHD.  God bless you in this process!  

  • Sara W

    Angie,

    My daughter was struggling quite a bit in school around 4th grade. She was falling behind. She was always moving, and rarely ever sat still. She HATED to read, and the teachers were saying that she would never pay attention in class. I took all their notes and her grades from the previous years to the doctor. He immediately put her on medication. 

    My first thought was the same as another noter in your previous entry. I wouldn’t deny her medication if she had an allergic reaction, or insulin if she were diabetic. I kept her on it for a month, and she turned into a zombie. 

    In that time, I did a lot more research. Her issue wasn’t ADD. It was a focus issue. We took her to a Behavioral Optometrist. She had several hours of testing. She has severe Convergence Insufficiency. Basically – her brain doesn’t put the input from her eyes together correctly. So, she was having issues with attention, because it literally HURT to pay attention. She was getting headaches, and at the slightest discomfort, she would redirect her attention. 

    She also has an issue with focus and redirecting that focus. Say, she’s reading a book sitting on her desk, when she looks up at the board to see what the teacher is doing, she has to consciously refocus on the board, or else her focus is 2 ft in front of her instead of 15 ft in front of her and vice versa. 

    We’ve got some focus exercises that she does now (she’s headed in to 8th grade now), and now that she’s aware of what’s happening, she’s able to adjust accordingly. We just had to figure out what worked for her. Oh – and we don’t do medication at all now. 

  • Vanckath

    You certainly got plenty of comments last week when you posted but I thought you might like to hear from of mom of two adults who had ADD as kids and are now wonderful successful young people.  I am a strong advocate of both medication and behavioral approaches because it is so hard for the behavioral approaches to work if they can’t pay attention to the things they are being taught. Later after they have learned the techniques, medication can sometimes be decreased or stopped.  We took the approach that this was like diabetes and their medicine was like insulin. We didn’t share with a lot of people that they were on medicine because we heard a lot of judgement and knew we were doing what was best for them. Both are now college graduates and never had to ask for special arrangements in college because they took medication and they say this was hugely important to them as they tried not to be “different”.  Hang in there, my ADD kids have great empathy for anyone struggling because they know what it feels like. I love their caring spirits! My kids were never zombies but I had friends who had to try several different medications before they found one that worked.  Don’t keep looking for whatever will help Kate succeed. 

  • Lynxp1

    Don’t know if this was mentioned but eliminating anything with red dye is very helpful

  • Stacy D.

    Angie… I am curious to know about Kate’s sensory/emotional issues. I am thinking Eliana may be experiencing some of that as well.

    Also, I wanted to let you know that even though Kate is homeschooled, she should still be able to be tested by a team of educators at your local public elementary school. At least that is the way it works in Maryland. While you can certainly take her for private testing, I am almost positive that you should be able to receive those same services for free through the public school system.

    I haven’t read through all the comments, but wanted to say that eliminating artificial dyes, as well as gluten, can be effective approach in helping to modify behavior in children with ADD/ADHD.

  • http://www.justpeachythatsme.blogspot.com/ scarlett

    Prayers for your sweet Kate and interested in what you learn…  My oldest also has sensory issues, auditory processing disorder, and bordline autism symptons, and I have some concerns about my youngest and ADD. Best wishes and prayers!

  • Buchanansc

    Due to your question and all the great responses, I’m sitting at my computer researching several of the products suggested. It’s over-whelming!!!! YIKES!! I’m currently using a very successful med. for my daughter but am always second guessing if that’s what’s best for her ~ feeling guilty because it’s not “natural”. You know, just treating the symptoms and not the problem . . . . . blah blah blah. It’s enough to make you go NUTS! Oh how I wish for a little note fluttered down from the Lord! Man that would save me some time!!!! Thanks for the update!

  • ame

    We’ve heard good reports on diet helps … 

    The Autism & ADHD Diet: A Step-by-Step Guide to Hope and Healing by Living Gluten Free and Casein Free (GFCF) and Other Interventions by Barrie Silbergerg

  • Plasticbackbooks

    While reading an Anne of Green Gables book it struck me that back then they thought seven years old was too early for school.  Maybe kids don’t have the problem – the cookie cutter mold we try to stick them in may be the problem.  I don’t know what your daily lives look like, so I have no advice other than turn to the Word of God – for wisdom (especially Proverbs).    Your job is to train her in the way that she should go – perhaps she is more inclined to flit around than other children, but God can give you wisdom in training her.  Be very cautious about labeling.  Don’t get discouraged.

  • Amanda K

    I am praying for your lovely Kate and your entire family during this time.  I can’t imagine it’s easy for you all but your reliance on the Lord is such an inspiration and will undoubtedly help you during this time. 

    I’ve recently been to a Naturopath for a few health issues and he’s told me to be careful where I get my vitamins and supplements.  I’ve noticed a huge change since changing my diet.  Not only do I look better but my energy and mood has been positively affected.  Perhaps seeking some alternative medical advice may contribute towards a solution for your little Kate.

    Abundant blessings to you Angie!

  • Melody Burr

    Hi Angie, I was a group of great women tonight and Melissa Irwin mentioned your blog and your post about ADHD as I was sharing some of my story with them about my son Aiden. He is 7 years old and since he was about 4 we have been dealing with his ADHD. As a mother with any child it can be so hard sometimes to understand why our children are so different than us and why they have this disorder. After years of research, different schools, different doctors, and different meds I found a place in Atlanta called Brain Balance. It is very intriguing to discover what they have found with children that have Neuro disorders. I think you should check their website out. I did take Aiden there for testing and it was amazing what I discovered. The book is called Disconnected Kids. It is a Holistic approach to helping these children. The blogs from other moms that have moved there for 12 weeks to put their children through the clinic are amazing. Aiden is still on Straterra (a non-stimulant) the addorell did not work well for him. It completely changed his personality. I couldn’t stand it. I have not yet taken him to the center for treatment. (Long Story) however the book alone can open your eyes to a few things. I would love maybe one day if it is in God’s plan for me to open one here in Franklin but we will see. :) Not sure if any of this will help. Also, I live in Franklin if you ever want to grab a cup of coffee and chit chat about it I would love to do so. 

    Love, Melody

  • Sandi

    Angie, I pray you find some clear answers to what might work best with your daughter.  I have 2 sons age 12 and 10 on Neurodevelopmental programs.  (and 4 other kids not on program) Our boys had sensory, auditory and visual processing issues.  Tactility issues, low processing, trouble with eye contact, focus, learning-especially reading.  What looked on the outside like a couple of “ADD” kids was so much more than we could have ever imagined.  I used to be an elementary school teacher and thought I knew a lot so why couldn’t I help my own kids?  We have been doing this program 2 1/2 years now.  I Homeschool and do the boys program at home.  It includes their academics in a way they can learn successfully.  We have been very careful to avoid any labels for our boys.  This advice was given to me by our Chiropractor years ago.  Once you get a label like “Autism” you don’t loose it-even if you eliminate the behaviors later in life that got you the label in the first place.  We use an ICAN ND out of CA, her name is Marilee Coots and her website is www. help-with-learning.com.  There are several ND’s in the South.  My friend Kay Ness is in Georgia, her sight is http://www.senc.us.  ICAN is a Christian ND organization.  Both pages have many articles you can read that are very helpful.  We also have done a variety of metabolic intervention and are currently on Chembalance.  Many parents see great progress with the GAPS diet and SBP diet (Dr. Young) on the No Harm Foundation website.  Feel free to contact me with any questions. 

    • Sandi

       Not sure if you can see my e-mail, it did not post in the comment
      r2boys02@yaho.com

  • asher

    I’ve seen amazing things happen with the GAPS diet, it’s the Gut and Psychology Sydrome by Dr. Natasha Campbell-McBride she explains the connection the gut health has with behavioral, emotional, mental health and helps heal it – it can be super tough to do but the results are so worth it! Good luck

  • Heather Hammond

    I feel your pain and just thinking about what to write is bringing on the tears!!! ADHD is near and dear to my heart. My son was diagnosed in the 1st grade, we did not medicate until he was in the 4th grade. It was a very hard choice to make – we felt there was no other option because he went from honor roll to failing. We tried an All Natural Diet (Feingold diet) first. This did help with Grayson’s behavior and hyperactivity but did not help with his inattention. The inattention was the biggest problem for him in school. The first months on medication (Concerta 18mg) were perfect!!! He built up a tolerance quickly so we increased to Concerta 27mg. One day on that he had severe anger issues when he crashed off the meds. So we switched to Concerta 36mg he did great on that. At, least for a while. He soon built up tolerance so we increased to Concerta 54mg. That was fine for a short time them the afternoon crash aggression was back. Then we switched to Vyvance two different doses within a short time, however the side effects were severe (facial, vocal tics) then we tried Focalin. That did not work at all. We finally tried Concerta 36mg and added Intuitive 3mg to counter react the evening crash with aggression. This combination of meds has worked better and longer for Grayson. He is now back on honor roll and is turning into a very well rounded preteen.
    Grayson has been medicated for a year and half. We changed from Christian school to Public school in the midst of this all. I felt we needed the resources that the public school could offer verse our Christian school. It has not been easy!!! I had to fight most of the school year to get what I needed to help Grayson at home. He has a 504 plan with accommodations to help him at school. That is something you may need to read up on. It still blows my mind the difference in symptoms from child to child and med to med. Everyone has a different story to tell. Three of the most important things I learned about ADHD is that consistency and structure are the key to our survival!!! And learning to embrace ADHD has been a must for my family!!! I am an advocate for my child and for ADHD. It is real and I am doing my best to help my son learn to live with it. It is not going away so he must learn how to live in a normal world with an abnormal brain. Good luck to you!! I am praying for you and I promise, it will get worse but it will get BETTER!!!!! I will tell you what a psychologist once told me,  ” your child will be fine, because she has you for a mother!!!! ”  

  • Richelle Lynn Wright

    I’ve found this book to be a great tool to help young kids (and others) in particular, understand a bit about ADD. It also helps adults appreciate the ways “ADD-ness” can be a gift because in so many ways. These kids are amazing!

    http://www.amazon.com/Dogs-Have-ADHD-Kathy-Hoopmann/dp/1843106515

  • http://togocup.wordpress.com/ Jen Showalter

    I have many friends who work at Currey-Ingram and I know that it is a place that will nurture her.  Try to connect with Eric Johnson who is one of the principals or Robb Killen who is one of the guidance counselors.  Jennifer Seay is also a wonderful person to talk to there and would most likely be involved with Kate.  The people I know there went through Trevecca (I know you have friends who have connections with Trevecca – in fact, I had a conversation with your hubby when he sang there a couple of years ago when I was on staff) and come from a Christian world-view.  I highly recommend it.  If I can connect you at all, please let me know.  

    • mrenee5

      I was just coming on here to leave the exact same information as Jen.  Currey-Ingram (although pricey) is an incredible place and I have known several families whose children attended school there and they raved about it and what it did for their children.  They could not have been more pleased.  Jennifer Seay is an incredible, Godly woman who you will love!

  • shan

    My best friend went through this same exact thing with her son. She is very anti-medication for her son but also understands that it does work for some kids. Like Kate’s, his per. suggested that she have further testing done and he did have an underlying sensory problem. After a couple of occupational therapy sessions,she learned wat his triggers were and learned how to divert his focus when these triggers were around. I can say in the last year,with a lot of work, he has really improved & is doing better in school. He still has his moments but its much easier for them to deal with now. One of the treatments that struck me, was the therapist said to give him gum to chew when he’s doing his work. Also, he told her to get an exercise ball to sit on.

    I wish you guys the best!

    Love from SC

  • tj

    it has been suggested to my that my two boys have add or adhd or dyslexia or other learning disorders or even autism…  actually they have none of that, just a lot of stress from moving around too much, their father traveling a lot for work and they are super sensitive but really bright

    we started the think/read program with learningrx and what a difference a month has made…check out the website, i don’t know if it is close to you but definitely worth looking into

    it is improving their confidence and basic cognitive skills, life at home and school has gotten so much easier

    wish you the best

     http://www.learningrx.com/

  • Kathleen Trenchard

    I have walked this road and I have to tell you that all will be fine.  Every infant is perfect but no child is.  They all struggle with one thing or another at some time in their young lives.  That is what childhood is for.  Smoothing out the wrinkles.  The only thing that can go wrong is if you ignore the problem.  You and your husband will research and find ways to help Kate be her best and that will be great.  My older girls both struggled in 3rd and 4th grade but are doing wonderfully now.  My son is having similar problems now that he is headed for 4th grade but I know we will find his way.  Did you know that children with ADD/ADHD are most often very intelligent and often gifted. God bless you.  

  • amy

    I just wanted to comment and let you know that your daughter seems so similar to mine. At least what you have shared about her. My now ten year old went through an OT eval. 2 years ago because she was found to have a sensory processing disorder. We read the book “The Out of Sync Child.” She spent time in OT working with a therapist. It was extremely helpful. I am almost certain she would have been mis-diagnosed with aADD if we didn’t look into the sensory issues. Also, last summer we sent her to Learning RX where they literally retrain the brain. She went for 4-5 days a week for 5 months. It made all the difference in the world with her. I pray that you find answers for her. :)

    • Drmomjoyce

      HI Amy – Im so glad to see your post, I too believe that ADD/ADHD is diagnosed too often when in fact its something else. This book too changed my whole approach to my son and Iim so thankful to be on this learning journey of SPD, Lots of hard work but lots of great benefits too. I too recommend an assessment by an OT, they have helped my son soo much.

  • Gina Whaley

    I wanted to ask if Kate was by chance born via c-section.  My children just underwent a Neuro Reorganization evaluation and we found that their Galant Reflex is still in tact or unintegrated.  With this issue, poor concentration and the inability to sit still can occur.  We are doing Rhythmic Movement Therapy exercises 1, 2, and 5 to help integrate this reflex and no medication should be necessary.

    Best wishes.
    Gina

  • snm03@tds.net

    God gave me my amazing son, who is now eight.  We very early on recognized that he is differently and amazingly abled.   Because they don’t diagnose ADHD/ADD/Aspergers at the age of three and most
    definitely did not medicate, we waited and wondered many times we
    wondered what was coming next.  In his third year, because of certain behaviors, he started with a child psychologist. This was as much as to help me parent him as it was/is to aid him in his learning and in life.  He has always had a close walk with God.- and for that I am very thankful.

    There are so many things through the years that we have tried with some and no success.  The regimen at this point is- as organic as possible (he is a cheeseburger kid- so McDonalds is not completely out of the picture), sugar and candy is limited, NO red dye 40 and limit other artificial colors, behavior modification, figured out what motivated him and why, our family is on a strict schedule, very limited technology (DS/computer), occupational therapy (his handwriting is terrible and he has organizational issues and believe it or not they help with that), Interactive metronome and finally medication.  His final diagnosis came this past winter from a neuro-psychologist.  I tried one thing at a time and I recommend looking up the interactive metronome thing. It seems to be helping his organization and ordering.

    The medication part I actually cried about (I am a cryer, too).  My son had serious impulse issues.  What his psychologist after a year and a half of behavior modification and other things (not to mention tons of prayer) said when you are potentially seeing a loss of self esteem or possible risk to self or others it is time.  The day I took my son into a normal ADHD trigger situation and we made it through without constant necessary correction…. Let me tell you it was a wonderful weight lifted from my shoulders.  My only true advice is to knock on all of the doors that God places in front of you until you get the answers that you will in your heart say this is the right choice.

      He is really an amazing kid.  He is still scattered for us in the beginning and at the end of the day.  But, that’s where the schedule falls into place.  My goal is to help him be the most productive, kind and loving man.

    I hope I have been of some help.  I know you have gotten tons of input already :)

  • kathy

    I don’t know if Kate has been tested, but our family has learned from experience, that celiac’s disease can often have similar symptoms in children.  We knew we had family members with the disease, but didn’t put that together with problems our now-adult daughter has with ADD.  Since being on gluten-free diet, she is now excelling in college and life in general.  Sometimes the tests are inconclusive, but in a month or two, the diet alone proves intolerance.  A bit of a challenge and tons of label reading, but so worth it!

  • Carrie

    You can get an evaluation through your school district, it is free to you, you should still qualofy even if you homeschool. I am a special ed teacher. If you do homeschool though, you should alter some of your teaching styles- more frequent breaks, sitting on a therapy ball to do work, gross motor breaks, etc. The book the out of sync child is amazing.

  • Robin T

    I haven’t read through all of the comments but do also look at Sensory Integration/Processing Disorders in addition to ADD/ADHD, symptoms can be similar.  Often times occupational therapy can do wonders for sensory disorders.  much love.

  • Nicki Veenstra

    This is amazing, seeing so many reach out and share their thoughts.  I have a little to share as well.  Get the toxins out of your home.  Our shampoos, cleaners, laundry detergents are full of formaldehyde and we’re living and breathing them in DAILY.  It affects everything about us.
    This link shows the difference it made for a child with Autism http://amyhauer.com/345/ if something so simple as switching stores can make such a difference it’s no wonder that my children are healthier now too.  I’m learning this really is something worth checking into our families health is precious and priceless.
    Info I had, just a few tidbits that show how finding good vitamins/supplements is HUGE!! With ADHD/ADD it is recommended to use
    vitality pack with Oligofructose complex to help maintain proper
    nutrition but for children should take the Koala Pals. Luminex helps
    maximize cerebral circulation. ProVex plus
    will reduce free radical activity and Phytomega contains omega 3.
    Cellwise is used to help maintaine cell structure in the brain and
    sustain sport will help maintain proper blood sugar balance. When
    people with ADD took grape seed extract (Provex plus) it began to
    improvement in concentration and mental focus.  http://www.melaleuca.com/ProductStore/Product.aspx?sku=499
    LuvNHugz – SupportNPrayerz that everything starts to come together beautifully for your whole family!! 

  • Kimberly

    Angie - 
      I have a daughter who has ADHD and an emotional disorder along with it.  Try reading, “The Out-of-Sync Child”, I found it very helpful.  Hang in there, it’s a tough journey.  We had so many people make us feel guilty for using medication.  With the meds, she can actually sit and listen and be successful in school.  You know your child better than anyone.  I found that most people that had negative opinions about medication, didn’t even have a child with ADHD.  As for evaluations, it’s a lot cheaper to go with a developmental pediatrician to evaluate, rather than a center.  They usually have a long waiting list though.

  • http://learningfromsophie.com/ Laura Anne

    My brother has aspergers, which didn’t get diagnosed until he was about 8 or 9. Two things helped loads.

    1. We took him to a place called INPP – http://www.inpp.org.uk/ which proved to help him (and later his best friend who was 10, and had ADD and dyslexia). They looked extensively at him and had exercises which ranged from listening to physiotherapy, helped us with what kind of things would help his environment to focus. Even stuff like how to arrange his wardrobe and what kind of desk he needed at school. I don’t know if they have INPP in USA but they do have research publications available on their website that may be of interest to you. INPP also look at their history from the womb – my bro had a very traumatic birth and it turned out some of his Dyspraxia was because he still had his womb reflexes.

    2. Diet – we discovered cutting out processed foods and refined sugar and highly saturated fatty foods helped his emotional health and his concentration hugely. We also went organic (especially with meat). This was tough, as he was a very picky eater but also used to eat and eat and eat. We did it with him, tried to make it fun and not a big deal. 6 weeks later his teacher couldn’t understand when he had a total meltdown – the cause? He’d given him a sugar doughnut as a reward for good behaviour.

  • PK

    I’m glad you are on the road to getting answers for Kate.  My niece has ADD/ADHD and her mom has done a lot of research and found that removing gluten from the diet can help the ADD/ADHD.  (I realize this may have been suggested already, but I did not read all the comments on this post or the last so forgive me if this is a repeat.  I also realize I’m a little late with this, so perhaps you have some answer by now.)  Prayers said that you would get answers and help for Kate.

  • Rfamily

    My 9 year old son has ADHD, I have ADD (didn’t find out I had it until I was an adult, which kind of bums me out since I think  I would have done so much better in college had I been treated for it then). It is a difficult thing to deal with, but 2 years after diagnosis, he is doing really well! Straight A’s in school and he earned the highest grade on the recent state tests. 

  • Dory

    I know a woman whose son was on the verge of being diagnosed with ADD/ADHD and they struggled with how to treat him, not wanting to use drugs, but knowing there was a problem.  Her mom saw a piece on the affiliation between gluten intolerance and ADD/ADHD.  Before drug therapy they decided to try the gluten free diet and after just a week he was a different kid.  Even at age 6, after a year on the diet, he recognized the differences in himself.  He went from being a kid in trouble at school with a special needs to type program attached to him because of his bad behavior to being put in the gifted/talented program.  If you want to contact me, feel free.

  • Melissa White

    As an adult who still struggles with ADD/ADHD – Kate will thank you one day for getting her the help she needs! I didn’t always like the solutions my mom came up with (during a time and place where ADD/ADHD wasn’t talked about or accepted), but I can totally see the need and see that if she hadn’t gotten me help, my life would not be what it is.

    God will guide you – Kate will thank you (although maybe not as quickly as you would like!). 

    Kudos to y’all for being attentive parents! :)

  • Kasey

    Your posts have not been coming through Google Reader for months, so I just read this. Someone may have already suggested it, but check out the Feingold Diet (often called the ADHD Diet). My 4 year old has been on it for about 6 months and we’ve seen huge improvements. Also, my son was just diagnosed with Sensory Processing Disorder. It often accompanies ADHD and food sensitivities.

  • katie@Impatientlypraying

    Hi Angie, I am just now reading this and I am sure you have already made your decisions with your sweet Kate. I grew up with ADD/ADHD and my dad had it,  and his dad had it. and I am positive my son has it as well. You mentioned about Currey Ingram. My husband worked there as their IT director. If you have any questions, he maybe able to help you. Email me back at impatientlypraying (at) gmail (dot) com and I can give you his number if you think that would be helpful.
    One other thing I did want to mention. One part of ADD is that you have low self esteem. It is nothing you did or didn’t do to make her have low self esteem. It is just part of the package with ADD. I and in my 30s and I still really struggle with it and I see it in my son and I have to keep reminding me that it was and is not a lack of my lovingness or parenting that made him this way. Just my two cents. :)

  • Jessica

    We’ve had great success with occupational therapy for sensory issues with my little ones. It was rather impressive the difference after one session. 

  • Jules19osu

    I am going to second everyone who has mentioned gluten/wheat intolerance.  We changed to a whole foods diet in May and were very excited to eat healthy.  Strangely, my son (6 years old) who has always been very good, very obedient, and never moody became a terror.  He would cry hysterically at the littlest things.  He couldn’t control rage.  He couldn’t focus.  He was displaying OCD behaviors.  He would literally have 10 epic meltdowns a day.  I thought maybe since school was out and he was going to bed later that maybe he wasn’t sleeping enough.  Then someone mentioned that wheat/gluten can cause these symptoms.  I had been making everything whole wheat (pasta, bread, baked goods, etc).  I took him off wheat/gluten and he suddenly went back to the way he had always been.  It is the strangest thing, and I would never have believed that could be the case because I thought whole wheat would be great for the kids!  Just wanted to throw that out there.  I figured it was worth a shot to try gluten free for a couple weeks and see if there are any improvements.  Love your blog!  :-)

    • Sonshine!

      Whole wheat is Not bad if you eat  NON-GMO foods.  God did not intend for us to eat what man is doing to food. We will ALL have food intolerances if we don’t start taking control what we put in our bodies.  We have a brain, we have to educate ourselves.  Or are we too filled with chlorine and floride???  hmmm…….look into it.

      • jules19osu

        It actually was non-GMO wheat. I get it from a local place. I never said wheat was bad. I still eat wheat and have no issue. But seeing my son go from a nice normal happy and compassionate kid to a hysterical controlling maniac and then back to normal after the wheat was gone obviously leads me to believe wheat is not good for him. Thank you for your insight but you misunderstood. I still eat wheat as does the rest of my family with no ill effects….

  • Ally5511

    Hi Angie,
    I have just found your app with your blogs… I am amazed and stand in awe of the way God is working His will out through you to reach others … So simply but in such a humble but mighty way.. We serve an amazing God.
    Regarding Kate.. There is a book called A MORE EXCELLENT WAY by Henry W Wright. I would highly recommend that you get yourself a copy of this book and read it. It will give you a very interesting perspective of this problem that seems to be so common now.
    May God bless you, your family and your ministry.
    Love in Him,
    Alice-Anne

  • http://twitter.com/beccaroberts Becca Roberts

    Angie….I’ve been reading your blog for years.  I hit a low spot in life, and stopped reading for a while, but am doing better now, and just saw this.  I hope you still catch “late” comments!!!  Part of my low spot in life had to do with my daughter.  She is 7 and in late Sept. she started having problems at school.  She would crawl under her desk crying.  She is incredibly bright for her age, and I was so worried when this started happening.  It began once a week, and eventually worked up to every day.  I decided we needed outside help, as the school just couldn’t seem to figure anything out, and it started happening at home too.  She has been in behavioral therapy since then.  I think adding at outside “friend” has helped….but we were still seeing issues.  2 months ago the therapist saw a major meltdown in her office….and we began discussing meds.  You see, Kaylee has been diagnosed as an extreme perfectionist with OCD tendencies, sensory issues, and anxiety.  I was scared to try meds….especially since I had an adverse reaction to meds when suffering from PPD after having her.  But….we gave it a try…and my Kaylee is back!  My free-spirited little girl can have fun again!  I’m telling you this to give you hope, and let you know that the RIGHT meds can really help!!! 
    Rebecca

  • Meredith

    Angie – I know you have gotten some wonderful advice, but I wanted to add my two cents. We recently had our daughter’s vision tested, as she prepares to enter KG – and it turns out she has horrible vision and we had no idea, because children adapt so well to the sight they are born with. There were no signs, and she is now outfitted in fabulous purple glasses that will help her conquer the world. Something the pediatric opthamalogist said struck me – she said that most children with poor vision (that goes undiagnosed and untreated) come to her in 1/2/3rd grades as being children likely to have ADD/ADHD, when in fact, their vision is just bad.
    I know you and your fabulous ped are on top of things, but just in case, I wanted to share our experience. Good luck!!!!

  • http://www.facebook.com/people/Kimberly-Baker/502167321 Kimberly Baker

    I pray for you as you go down this road, because it is a similar road I have been going down with my daughter. She was first diagnosed with ADHD, and that seemed like the “correct” diagnosis. Find a dr. that will spend lots of time observing and asking questions. There are so many things in children that have very similar symptoms or seem to mimic each other. She also had emotional issues and it was always thought that this was on top of having the ADHD. As it turned out, she did not have the ADHD, her concentration issues were because of an Anxiety disorder, which also caused her to be emotional. It is very easy to mis-diagnosis a child because of the similarity of the symptoms. I have a family that runs deep with anxiety, but did not recognize it as such in my own child. She now is on an anxiety medication and for the first time told me she is happy, and the fear is “mostly” gone. Keep “pressing on”, you are a wonderful mother and trust your mother’s instinct.